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It’s not that I have nothing to say…

15 Apr

…it’s more that my brain may be spinning out of control because there’s so much going on, coupled with the idea that wow, it’s actually spring out, and sunny, and things are blooming here and I’m convinced that the PNW is trying to seduce me with its charms by sending a pair of ducks to visit in my back yard.

seriously - ducks

seriously – ducks

 

The kids had Spring Break last week, plus we had a friend over from Ireland, and what the heck, the weather’s so nice suddenly, let’s have a bbq.  That’s when the ducks arrived as well.  And for better or worse – but probably hopefully just better – I’ve joined a couple friends and we’ve signed up for personal training at the local gym.  God help that nice young man who’s taking us lot on.

There’s also been a call to Poison Control (to learn that it’s okay to take 30 or so B12 vitamin gummies) and one dog who wandered off (but only for 20 minutes, and she made friends with a couple walking through the neighborhood with their dog) and the water pipe below all the giant landscaping boulders has sprung a leak, leading to this lovely view for now…

I'm referring to it as our duck pond.

I’m referring to it as our duck pond.

 

 

And then there was the last minute cancellation spot at the neurologist, so Maura and I went for the regular check-up visit.  The doctor must have seen that I needed more to deal with because he mentioned possibly doing a trial of taking her off seizure meds.  He was also kind enough to smile and note that I wasn’t probably ready to hear that.  Instead, we’re going to do an EEG first, see what that brain of hers is doing before deciding whether or not to try taking her off meds.

I can’t even wrap my brain around it. I think that she still needs it.  But I also think that this neurologist would be very good about listening to me when I say that, which is its own comfort.

We did have to go for a blood draw, which we haven’t done in years and were overdue in checking her blood levels.  The last blood draw we did was quite traumatic, so I let the lab person know and said “Yes, we might need an extra person.”

To those three women in the lab at Seattle Children’s Hospital – thank you.  Thank you for keeping the mood light and for telling Maura how good she was being even when she cried and howled, and to the one who totally distracted her when she said “Do you like the movie “Frozen”?” and started singing “Let It Go”.  I’m glad you all got to see how quickly Maura was over her trauma and her smile of relief at the end.

And I’m also grateful for the Starbuck’s located in the lobby where I immediately took Maura for a treat for being so very brave.

I still have to schedule her EEG, which will hopefully go a lot smoother.  But first, I shall finish my coffee.

 

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3 Responses to “It’s not that I have nothing to say…”

  1. saracvt April 15, 2014 at 11:26 am #

    Actually, there might be a underlying reason behind taking Maura off the anticonvulsants. I now regard them with deep suspicion.

    For the last ten years or so, I’ve been on this one med. I’ve been slowly getting slower and darker–but hey, I had clinical depression already, so who could tell? Now it’s so bad that I can easily sleep 23 out of 24 hours and am on a med normally given only to narcoleptics just to keep me CONSCIOUS. Suddenly one day I think to look up side effects of my long term epilepsy med. Boom–“gradually slowing physical & mental activity, loss of mental alertness, mental confusion, unusual drowsiness”, it’s all there. Now I’m switching to a previous med I know worked but I got off of when I wanted to conceive. I’m not having any more kids.

    Bottom line, these are powerful mind drugs and if she doesn’t really REALLY need them, they can effects you may not even notice for years until they screw up your life for a decade or so. My side effect was rare but it happens, and I don’t know if I’ll ever know of my life I lost because of it.

  2. saracvt April 15, 2014 at 11:32 am #

    Oh–and tell Maura EEGs have gotten a lot better. When I first started having to take them, about 35 years ago I guess it is now (gosh I AM old, aren’t I?), they had this glue they put in your hair that stung and wouldn’t wash out for a week. Made you feel like Frankenstein’s Monster.

  3. Cyndi April 15, 2014 at 12:09 pm #

    The nurses at Seattle Children’s are the BEST! Glad they were so wonderful for you too!
    As for Spring in PNW….don’t let it fool you. It will likely rain buckets a week from now. Sorry to rain on your…happy spring?

    BUT, maybe you and the kids, if you have the time, can drive north to Skagit Valley, to the tulip festival. With the unusually warm weather the fields should be in full bloom. Enjoy every bit of it while you can!
    Not that you need something else to keep you busy. Lol
    I’m crossing my figers for you that the EEG will go smoothly!

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