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I’m sure today will go well

1 May

Did you note that heavy dose of sarcasm?  Because it was there.

See, today Maura has an EEG.  She’s had two EEG’s in her life.  One went fantastically, one…well…there was a lot of crying, but she calmed down and we got it done once she realized the things being stuck on her head weren’t going to hurt.

When the children’s hospital heard this, their response was to suggest sedation.  We’re not big on sedation.  Our very trusted former pediatrician always backed us up on that.  The children’s hospital rep did grill me on how cooperative Maura would be, could she follow directions?  Would she be cooperative?

Um…maybe?

I should have just lied.  “Yes, she’s be great!”  But that’s just not in my nature.  Of course, I didn’t think any sign of even a “maybe” would be “Well maybe we should just sedate her.”  Um…gee…could we at least attempt the thing before sedating the child with neurological issues?  Please?

They agreed to trying it without sedation.  Then said “Oh, well, we’ll want her tired, we usually suggest waking them up five hours early.”

Okay, now you’re just trying to kill me, aren’t you?

Luckily, the rep then said “But if being overtired might make her less cooperative (um, ya think?) then maybe don’t wake her up so early.”

Okay.  Great.  We have a plan, a brand new copy of “The Little Mermaid” to bring, we can do this, right?

And then, yesterday afternoon, Maura tripped and face-planted into the cement patio, banging up her knee, scraping her chin and right under her nose and getting a fat lip (but thank God, no loose teeth!).

It was as tragic as it sounds.

She sobbed for thirty minutes over it.  She did eventually perk up, especially when we put her in the car where she stuck her head close to the open window so the wind could blow against her face.  And then we pulled into Dairy Queen where the nice staff helped us figure out what she wanted by pointing to the various ice cream pictures on their menu sign (Maura wanted the Oreo shake).   Then to her delight, I let Maura stay up late, watching tv on my bed.

Oh yeah, she’s tired today.

Tired, miffed that I wouldn’t let her wear the party dress to school, still a bit tragic over all her boo boos, and not impressed that we’re going to see a doctor who’s going to “play with her hair”.

[sarcasm] Yes, I’m sure she’ll be the model of cooperation today. [/sarcasm]

Honestly, I’m hoping I’m getting all worked up over nothing, that the staff is fabulous, and very understanding of her type of special needs.  They are a children’s hospital, surely they will right?  God knows I’m still warm and fuzzy at how great the ladies in the lab were during Maura’s blood draw.  Hopefully who ever we deal with today will be as great as they were.

Also, I should probably apologize to everyone at the school for sending overtired tragic Maura to school today…or maybe just send them a pitcher of margaritas…

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7 Responses to “I’m sure today will go well”

  1. andthreemakesfive May 1, 2014 at 12:14 pm #

    Good luck.. enjoy the movie!! 🙂

  2. Eva Wright May 1, 2014 at 12:18 pm #

    Hopefully its like flying with kids. The anxiety before you get to your seat is the worst and then you land and think “man! That was easy!”. Good thoughts for the day for everyone involved.

  3. steevbeed May 1, 2014 at 1:32 pm #

    I hope it does go well, good luck.

  4. Jackie groden May 1, 2014 at 2:47 pm #

    Thinking of u guys today.. I know exactly what u are feeling! Good luck and strenghth to you and Maura!

  5. Cheryle May 1, 2014 at 3:43 pm #

    Hope everything goes well for all of you!

    Our problem right now is that our daughter, with autism, also has migraines that require a trip to the ER for treatment. The last two times they have given her something that normally will make you sleepy but with her it does the opposite and won’t let her sleep! Even when the migraine stops she is so hyped up or something that she can’t sleep. Since she doesn’t understand being “Hyped up” she thinks she is still sick. We’re hoping our Neurologist will write a letter to take to the ER saying “DO NOT” give her this med.

  6. Christine Phelan May 1, 2014 at 10:20 pm #

    As a retired Parapro of 24 years…. They’ll appreciate the Marquita’s!!

    Let us know how it goes. : )

  7. Cair May 2, 2014 at 9:49 am #

    That day is over by the time I read this. No matter how it went I’m sure you’re glad it’s over. I hope the dr’s got info that will help them better treat Maura.

    Sending you a virtual glass of wine!

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