It’s Friday

20 Jun

And therefore, I am singing this song


It’s the last day of school for Maura, God help us.  Once again summer is looming with its “What am I going to do with this particular child?” thoughts.  I haven’t heard about any sort of ESY, so I guess we don’t qualify?  But we haven’t had ESY (extended school year) since Michigan, so we’re a bit used to not having ESY anymore.

I do know the first thing Maura will want to do – and that’s sleep in.

Yes, we’re both looking forward to sleeping in this summer.  I love that this child loves to sleep, and sleep in.  LOVE IT.  It’s my little perk, and I am thankful for it.

But other than sleeping in and trying to keep her off my computer, I’m not sure what to do with her.  I haven’t found any summer programs for her kind yet.  I’m sure they are out there, but I haven’t heard of them yet.  I’d be happy with a day camp scenario but have yet to find one for a kid with “something”.  Oh sure, there’s autism camps and deaf camps and cancer camps and MS camps and hemophilia camps – and all those are great!  I love seeing my friends kids be able to find a camp that fits their needs.  We just need to find one to fit ours.  Preferably sponsored by Starbucks.

Maybe I could just pay the teen girl of mine to play “summer camp” with her sister.  It would involve nail painting and dance parties.  I’m okay with that.

Yeah, I should have started looking into this sooner, huh?

What am I going to do with this child?  Yipes.


5 Responses to “It’s Friday”

  1. Deborah June 20, 2014 at 12:38 pm #

    I have the same challenges with my daughter (now 19 years old and with a ‘unique’ disability). I have come to hate summers because our lives are turned upside down and no one benefits. To make it worse, now that my daughter is 19, I am having to find so-called day support programs for her – places where she will be able to go once she is no longer eligible for school services. We’ve been trying one this week, and it is worse than bad.

    I’m a single mother of 5 children, 4 of whom have disabilities. I have to work full time because my children still like to eat. But the summer juggling act has me so stressed. I have no good solutions, or haven’t found them yet, but that is not for lack of trying.

    The future of our children has got to be better. I just can’t imagine that what we have experienced this week is the only choice for my daughter’s future.

  2. Hannah June 20, 2014 at 1:22 pm #

    I work at an easter seals camp in canada (a few of the staff read blogs together to learn actual stuff) and we wish we could break the time/space continuum to get her to eastern canada! Some of our campers come with a diagnosis but by day 2 all I can remember is if they have seizures and if they need a life jacket.

    • dickdastardlyfra9156 July 10, 2014 at 6:06 pm #

      For some one who has an answer for everything (not always the right or indeed appropriate answer) and an opinion on nearly everything – I find myself stopped!, mouth open! a thousand ideas / thoughts forming but . . . . nothing, I just don’t know what to say. “I’m Gob Smacked”

      [A Gob is a slang word in Ireland for your mouth]

  3. Lisa Jane June 20, 2014 at 1:52 pm #

    It’s a pity yer not still in Ireland! The play centre I work in, Tir na nOg in Charleville, Co. Cork is running a two week summer camp one in July and one in August for kids with ASD (additional special needs) and their siblings 🙂

  4. Linda Black-Jones June 20, 2014 at 2:54 pm #

    Is there any way you can get a summer program, sponsored by the school dept written into her IEP? In my city, if the school believes the child will slide,they will write it into their IEP.

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