My daughter Maura is able-bodied. Her legs work fine. Her muscles are pretty strong. Her organs are doing awesome. Even her epilepsy has cleared up, gone into remission or whatever epilepsy does when it stops occurring. Sure, there’s some low muscle tone and some far-sightedness, and she’s not amazingly coordinated. But all in all, Maura is quite healthy.
But she is also disabled.
But she would be considered able-bodied.
But she’s actual disabled.
But she’s healthy.
She is a conundrum. She doesn’t appear disabled. She has what’s known as “invisible disabilities” – hers can’t be seen at first glance. And that’s what’s getting me worried, what with health care back on the auction block.
Kellyanne Conway said (and I reluctantly share) –
Does this mean she expects someone like Maura to see what her options are?
“Don’t be silly Phoebe, she doesn’t mean her, obviously.”
But obviously, Maura is able-bodied. And Maura’s been considered “not disabled enough” in the past, by the state of Michigan when we applied for a children with special needs Medicaid program.
You can be able-bodied and unable to work. Maura a prime example. But there’s also those who are working so hard to just stay alive mentally that they can’t actually hold a job. Should they seek “other options” because they have PTSD or depression? Should they be denied Medicaid because they are working to figure out how to live with schizophrenia right now? I mean, they might be as able-bodied as Maura. Are they just all slackers undeserving of health care?
Meanwhile, V.P. Pence said this –
First – why the rush? Why does it have to be by the end of summer? Why can’t we take our time and do it right?
Second – what’s this “personal responsibility” you speak of? Can you define it more?
Because, Mr. Pence, your platform is a pro-life one. And one would think that being pro-life means you’re willing to help all lives, not just congressional ones or political ones. But when you say “personal responsibility”, it seems that you are putting families who do choose life – whether it’s the couple whose unborn child has been diagnosed in utero with Down Syndrome or the woman taking care of her elderly parent – off to float alone.
That isn’t the American way. It may have become the Republican way, to smack a person on the ass as you shoo them out the door while yelling “Good luck! By the way, there’s holes full of bears and snakes!”, but as Americans, we pride ourselves on coming together and helping each other. That’s why there are so many people sharing Go Fund Me campaigns to pay for someone’s child’s new wheel chair (that isn’t covered by insurance) or wife’s cancer treatments (that have left them bankrupt).
You say “personal responsibility” like we all haven’t been personally responsible for our health care bills. Newflash – we already are. Too much so. But the way you say it has people worried. Do you expect my disabled daughter to be personally responsible for her health care bills when she can’t be left responsible for brushing her teeth daily without supervision?
“Of course not Phoebe.” you may say. But what you’re also saying is that we as her parents, who are being pro-life, are personally responsible. And not to expect help. Ever. Because that’s the Republican way.
So here I am, with my able-bodied daughter, wondering what the future holds. What the future is going to expect from her. And I don’t know.
What I do know is that something like health care shouldn’t be rushed. Something like health care should have lots of input from people whose lives it affects. Some things, like the phrases “able-bodied” and “personal responsibility” shouldn’t be thrown about carelessly. Health care shouldn’t be broken down into sound bytes and tweets.
And I definitely shouldn’t be told I’m overreacting or that it can’t possibly happen when there are congressmen who are willing to vote on a health care bill they haven’t read.
I have enough to worry about and plan for Maura’s future. I don’t need to worry about what kind of job will give her health benefits because she’s deemed “able-bodied” and able to work.
If you live in these states, please call the listed senators. If you don’t live in these states, pass on this list to people you know in those states. A call sc…ript is below the list. Copy and paste for widest circulation. Call EVEN IF they said they are voting against the bill. GOP Leaders are looking to offer $$ for votes right now.
Alaska – Lisa Murkowski (202) 224-6665
Alaska – Dan Sullivan (202) 224-3004
Arkansas – Tom Cotton (202) 224-2353
Arizona – Jeff Flake (202) 224-4521
Colorado – Cory Gardner (202) 224-5941
Florida – Marco Rubio (202) 224-3041
Louisiana – Bill Cassidy (202) 224-5824
Maine – Susan Collins (202) 224-2523
Nevada – Dean Heller (202) 224-6244
Ohio – Rob Portman (202) 224-3353
Pennsylvania – Patrick Toomey (202) 224-4254
Wisconsin – Ron Johnson (202) 224-5323
West Virginia – Joe Manchin (D) (202) 224-3954
West Virginia – Shelly Moore Caputo (R) (202) 224-6472
“Hi, my name is [NAME] and I’m a constituent from [CITY / STATE].
I’m calling to urge Senator [NAME] to vote against the Better Care Reconciliation Act. As the CBO analysis of the bill makes clear, this legislation will cause millions of people to lose their insurance and will raise premiums for millions of others, yet does nothing to resolve the Affordable Care Act’s shortcomings. I hope the Senator will do the right thing and reject this bill, even if there are modest changes. Reforming the ACA should be done in an open, deliberate way with public hearings and input – not rushed through the Senate with only days to consider the ramifications.”