You know, it’s not just Epi-pens

The interwebs are gasping over the 400% price hike in Epipens. “I need to pay HOW MUCH now?” is the collective statement. Along with “WTH? This is WRONG!” And now, everyone is reporting on it, commenting on it, sending out petitions to stop price gouging this life saving medicine… Listen. I get it. I totally…

Read More

The time I realized we didn’t get a Big Reveal Moment

So many special needs story start with “When we got the diagnosis…” or “On the day he was born, we knew he had…” or “The doctor looked at us with a sad expression and told us she had…” I’ve read these stories for years now, and yet it just recently occurred to me that Maura’s…

Read More

I’m still just a mom

I blog about our life with special needs.  But it doesn’t make me an expert.  You may know a woman who’s daughter has Down Syndrome, or a dad who’s son has autism, but that doesn’t mean they understand what life is like with a child who is tube-fed, or who uses a wheel chair.  You…

Read More